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Educative Bodies: Useful Narratives

Mon, April 25, 2:30 to 4:00pm PDT (2:30 to 4:00pm PDT), SIG Virtual Rooms, SIG-Biographical and Documentary Research Virtual Paper Session Room

Abstract

The Illness narratives in this life history emerge from my commitment to bear witness to three different “dys-appearing” bodies and their illness experiences. Illness narratives are agential moral acts of witness reclaiming an experience from the modernist medical narrative that cannot describe nor contain it. The narrative/s I share entangles the illness experiences of my meningioma, my husband’s multiple myeloma, and a dearly loved sister’s metastatic stage 4 breast cancer that composed a trifecta of suffering, pain, and grace. I think through these experiences drawing on the work of Drew Leder and Arthur Frank to compose these life experiences as narrative “not necessarily those lives as they were lived, but these stories become our experience of those lives” (Frank, 1995).

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