Nothing About Us Without Us: Reflections on Building a Critical Disability Research-Practice Partnership

• In Event: AERA Roundtable Session Thursday 9:50 am Four Seasons Ballroom 1
  In Roundtable Session: Reimagining Disability Research: The Power of Accessible, Critical, and Creative Methodologies (Table 11)

Abstract

We describe our work as a research team in the first year of an internal seed grant-funded project designed to conceptualize and implement a critical disability RPP (CDRPP) intended to increase access to research production and dissemination for people with disabilities. We focus on two learning moments that highlight the value of applying a critical disability lens in designing and enacting an inclusive RPP. We examine how expectations and understandings of research participation are circumscribed by normative notions of time and of engagement with the IRB certification process, including what ethical research participation looks like and entails for people with disabilities. We synthesize these moments as exemplary of the transformative synergy between the ethos of RPPs and critical disability studies.

Authors

• Blanca Gamez-Djokic, National Louis University

• Molly K. Buren, National Louis University

• Shaunti Knauth, National Louis University

• Alexandra Baig, National-Louis University

• Isaiah Randolph, National-Louis University

• Eby Daniels, National-Louis University

• Daniel Steinwedel, National-Louis University

• Bari Fleischer, Touro University