Exploring the Intersectionality of LGBTQ+ Youth and Disability: Challenges and Protections in IRB Processes

• In Event: Justice-Focused Praxis in Qualitative Research With LGBTQ+ Youth

Abstract

Objectives or Purposes:

The primary objectives of this study are to explore the lived experiences of LGBTQ+ youth with disabilities, identify the specific challenges they face in both everyday life and research contexts, assess the current IRB protocols and their effectiveness in protecting these marginalized groups, examine the representation of LGBTQ+ researchers in academia and its impact on research and advocacy, and propose recommendations for enhancing IRB protections to better serve LGBTQ+ youth with disabilities.

Perspective(s) or Theoretical Framework:

This study is grounded in intersectionality theory, which examines how various forms of social stratification, such as race, gender, sexuality, and disability, interconnect and impact individuals' lives (Crenshaw, 1989). The theoretical framework emphasizes the importance of understanding the compounded effects of multiple marginalized identities.

Methods, Techniques, or Modes of Inquiry:

A qualitative research design was employed, utilizing in-depth semi-structured interviews and focus groups. The study engaged with LGBTQ+ youth with disabilities, as well as advocates and professionals working with these populations. The data were analyzed using thematic analysis to identify common themes and patterns.

Data Sources, Evidence, Objects, or Materials:

Data were collected from interviews with LGBTQ+ youth with disabilities, aged 15-24, across various geographical locations; focus groups with advocates and professionals in the fields of disability rights, LGBTQ+ advocacy, and youth services; a review of existing IRB protocols and guidelines from academic institutions; and an examination of faculty demographics and representation of LGBTQ+ researchers in academia.

Results and/or Substantiated Conclusions or Warrants for Arguments/Point of View:

The study found that LGBTQ+ youth with disabilities face unique and compounded challenges, including social isolation, discrimination, and lack of accessible resources (Ghabrial, 2017; Meyer, 2016). Participants reported that current IRB protocols often fail to adequately address their specific needs and vulnerabilities. Key themes identified include inadequate representation and understanding of intersectional identities within IRB processes, insufficient training for researchers on issues related to LGBTQ+ youth and disability (Blumenfeld & Raymond, 2016; Garcia, Kosciw, & Diaz, 2017), the underrepresentation of LGBTQ+ researchers in academia, which affects research priorities and advocacy efforts (Misawa, 2015), and the need for more inclusive and adaptive research methodologies to ensure ethical engagement with these populations (Ridgway & Russell, 2010).

Scientific or Scholarly Significance of the Study or Work:

This study contributes to the growing body of literature on intersectionality by providing empirical evidence on the challenges faced by LGBTQ+ youth with disabilities. It underscores the necessity for more inclusive and protective IRB protocols and offers practical recommendations for improving ethical standards in research. Additionally, the study highlights the critical need for greater representation of LGBTQ+ researchers in academia to better advocate for and address the needs of marginalized communities. By addressing these gaps, the study aims to promote more equitable research practices that respect and safeguard the rights of all participants.

Author

• Suman Rath, Montclair State University