19. Data Management, Dissemination & Linkage in Add Health: The National Longitudinal Study of Adolescent to Adult Health; University of North Carolina-Chapel Hill

• In Event: 270 - Research Funding Opportunities and Data Resources (part of the Research Support Forum)

Abstract

The National Longitudinal Study of Adolescent to Adult Health (Add Health) is a longitudinal study of a nationally representative sample of adolescents in grades 7-12 in the United States during the 1994-1995 school year. The Add Health cohort has been followed into young adulthood with four in-home interviews from 1995-2009 and will conduct a fifth wave of web based data collection and in-home visits in 2016-2018 to collect social and biological data on the respondents at ages 31-42. This poster provides an overview of our data dissemination strategies, a four tiered system set to minimize deductive disclosure risk for respondents. The poster also presents biomarker data available for each wave of data collection and provides a summary of Wave V data collection underway. We will discuss the most popular research areas and explore opportunities for new data users. Genome-Wide Association Study (GWAS) data will be disseminated through The NIH database of Genotypes and Phenotypes (dbGaP) in 2016 and information on data linkage between social science phenotype and the newly available genetic data will be explored.

Authors

• Ashley Sorgi, UNC

• Sarah Catherine Dean, University of North Carolina

• Kathleen Mullan Harris, University of North Carolina

• Carolyn Tucker Halpern, University of North Carolina-Chapel Hill

• Maria Francia Marrufo, University of North Carolina-Chapel Hill