Caring Culture: How Healthcare-related Knowledge in Social Networks Affects the Management of Alzheimer's Disease

• In Event: 2184 - Section on Medical Sociology Refereed Roundtable Session
  In Refereed Roundtable 60min: Table 09. Treatment Adherence and Navigating Care

Abstract

Nonprofessional caregivers play a critical role in the early detection and long-term management of cognitive health problems for individuals coping with Alzheimer’s disease. Prior research demonstrates that social engagement with caregivers and other individuals can prevent or alleviate cognitive decline. Despite research on the beneficial effects of social engagement, scholars have rarely considered how differences in knowledge, experience, and beliefs make some caregivers better equipped to provide support than others. This study applies insights from social network analysis and cultural theory to examine the consequences healthcare-related knowledge embedded in social networks for older adults facing AD. Using clinical and social network data collected from participants at an Alzheimer’s disease research clinic from 2015-2017, I examine how access to healthcare-related knowledge via networks affects participants’ experiences managing the onset and progression of AD. Results from random-intercept regressions indicate that knowledgeable network members disproportionately listen to participants’ problems and provide them with advice. Further analyses show that greater average knowledge in participants’ networks is associated with improved quality of life, but only among impaired participants. This study illustrates that access to cultural resources is one mechanism through which social relationships can shape health inequalities in later life.

Author

• William R. McConnell, Indiana University-Bloomington