Human Rights, Disability and Science: Perspectives of Health Professionals

• In Event: 3220 - Disability and Work

Abstract

Objective: The goal of this study was to investigate the attitudes and knowledge of health professionals concerning human rights within the context of disability, science, and technology access.

Background: People with spinal cord injury (SCI) face barriers while accessing necessary services, equipment, and supports that contribute to societal participation. These barriers are frustrating for individuals with SCI and the health professionals recommending equipment and services. This study focuses on health professionals since the medical model-oriented health system in the US places them as gatekeepers to obtaining technology. Barriers to technology may be a human rights violation, however, health professionals and people with disabilities rarely speak the language of human rights. Viewing such limitations through the lens of human rights may offer new strategies for realizing the equipment and technological needs of people with SCI.

Methods: Qualitative interviews were conducted with 12 health professionals specializing in SCI care in this ongoing study. Interviews were recorded, transcribed verbatim and coded to identify emerging themes within and across participants’ content.

Results: Primary findings show that most respondents were unaware of disability-relevant human rights doctrine. None were aware of the right to science as articulated in Article 15 of the International Covenant on Economic, Social, and Cultural Rights. Only two respondents had previously considered injustices experienced by their clients as human rights violations, yet nearly all were intrigued by framing access difficulties within that paradigm. Overall, participants reported they would find value in implementing human rights in their work.

Conclusion: Health professionals are receptive to a human rights framework. Further research is needed to identify actionable steps for implementing principles of human rights to increase access to technology by people with SCI.

Authors

• Anne Bryden, Case Western Reserve University

• Brian Gran, Case Western Reserve University