COVID-19 Pandemic and its Impact on Social Life of Hemophilia Patients

• In Event: 20820 - Section on Medical Sociology Roundtables
  In Refereed Roundtable (90 minute): Table 2. Navigating the COVID-19 Pandemic

Abstract

A COVID recognized in 2019, SARSCoV2, has caused a respiratory ailment pandemic called COVID19 with possible higher impact on chronic diseases such as Hemophilia. The aim of the study is to investigate the impact of lockdown on socio-economic profile of hemophilia patient’s families and to measure the impact of Covid-19 on physio-psychological health of hemophilia patients. The present study was conducted in two hemophilia Centers (i) The Children’s Hospital & the Institute of Child Health Multan, Pakistan and (ii) Fatimid Foundation Multan. Interview schedule was used as a tool for data collection. Data were collected from 200 patients, which included information on demographic and clinical data, needs, Economical, social life regarding medical care during COVID-19. Out of 200 Hemophilia patients, 77.5% ranked strongly agree that their bleeding disorder affect their daily activities. About 24.0% patients reported strongly disagree that adequate care continued to be provided in the hemophilia centers during COVID-19. Similarly, about 57.5% of the respondents ranked strongly agree that they need counseling from a mental health care professional. Likewise, 68.0% patients ranked strongly agree that disorder affected their quality of life. About 33.0% of the respondents ranked strongly agree that they terrified of Covid-19 testing procedure. About 65.0% respondents agreed that they suffer from shortage of donors and resources during COVID. The study recommended that the health care providers should be encouraged to talk about Covid-19 and Hemophilia as a public health problem in Pakistan and should enhance the public awareness about Hemophilia disease in Pakistan. Hemophilia specialists should be committed to address these concerns and guarantee treatment despite containment strategies.

Authors

• Kamran Ishfaq

• Iman Malik, Department of Sociology, Bahauddin Zakariya University Multan, Pakistan