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Metastatic cancer patients and their care-givers often do not participate as much as they would like to during a consultation. Question Prompt Lists (QPLs) have been used extensively to enhance patients’ and care-givers’ participation. However, it is unknown how patients and care-givers are using QPLs. The objective of this study was to provide insight into how metastatic cancer patients and care-givers use a QPL. Audiotaped consultations and follow-up nurse phone calls of 28 metastatic cancer patients were coded and content analysed. Most patients reported that they used the QPL. Questions asked by patients and care-givers from the QPL were predominately from the prognosis section. Patients and caregivers rarely asked questions literally from the QPL, instead they tailored questions to their disease characteristics and needs. A QPL is an useful tool to stimulate communication on prognosis. However, the effectiveness of tailored communication interventions for metastatic cancer patients should also be examined.
Kim Brandes, Amsterdam School of Communication Research/ University of Amsterdam
Phyllis Butow, U of Sydney
Annemiek Linn, U of Amsterdam
Martin Tattersall, Centre for Medical Psychology and Evidence-based Decision-making/ University of Sydney
Josephine Clayton, Greenwich Hospital
Patricia Davidson, U of Technology Sydney
Jane Young, U of Sydney
Ronald Epstein, U of Rochester Medical Centre
Adam Walczak, U of Sydney