Breaking the Sound Barrier: Exploring Parents Decision-Making Process of Cochlear Implants for Their Children

• In Event: Children & Family Health Communication

Abstract

The discussion around cochlear implants is controversial. This study focuses on parents decision-making process of the cochlear implant for their child(ren). The goal of this research is to understand the dynamic influences and values, that carry weight when making such a decision, so that ultimately so it can help parents make the most informed decision. There were 33 interviews conducted of parents who had a d/Deaf child and at least once considered cochlear implantation. The findings speak to which information sources parents seek and value when making this decision, what factors parents consider when making the decision, what personal experiences they have with stigma that may or may not affect the perception of information about this risky medical procedure, and to what extent parents’ communities and networks influence their decision-making. Understanding these the decision-making process for this often times stigmatized and risky decision is important an important step because it will advance our understanding of values and perspectives surrounding cochlear implants which will facilitate the education of parents, surgeons, academics, the deaf community, and policy makers about the potential advantages and disadvantages of making such a risky and possibly furthering stigmatized decision.

Author

• Pamara Flora Chang, Cornell University