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The evaluation of community wide strategies can benefit from access to data of various types, particularly individual-level administrative data maintained by governmental and nonprofit entities. One approach involves integrated data systems (IDS) to bring together data from various sources, reflecting service usage, health status, and well-being outcomes. Records are linked at the individual level and reveal patterns of experience that can inform practice and policy. This presentation explores a 20 year undertaking of data integration in Cuyahoga County, Ohio (Cleveland).
Governmental and nonprofit agencies routinely maintain administrative data, and these are often used to describe patterns of service use, risk factors, and outcomes. But individuals often utilize other services at the same time, and they traverse various public systems and nonprofit programs over time. The integration of administrative records across agencies and time has the potential to provide new types of information that can be utilized by decision makers to evaluate outcomes, target resources and gain understanding of how the collective work of agencies and systems are addressing the needs and concerns in their communities. Technical advances in data transfer, management, analysis and visualization now make it possible for this type of longitudinal, cross-system information to be made available in a timely fashion.
The challenges of working with large administrative data sets are well documented, and as such numerous strategies have been developed to maximize their effective use. Electronic individual records are matched using a combination of deterministic and probabilistic matching techniques and the resulting longitudinal files serve as the data sources for analyses. Logistic and analytic challenges include maintaining access to records and data security, ensuring the reliability of initial matching procedure, and constantly improving methods for resolving data discrepancies and redundancies.
The Child Household Integrated Longitudinal Data (CHILD) System was developed in partnership with a group of data steward organizations and funding entities. The system serves as a key resource in that it enables data-driven planning and decision making. It is also used to monitor access to services, scope and reach of services, and to enable and support evaluation activities that are both program specific and system wide. Administrative records are matched together from more than 35 data sources to construct individual-level records. The protected data are maintained in a highly secure computing environment and data analysis files are stripped of identifying information.
The work to date demonstrates (1) integration of administrative data provides an opportunity to better understand the cross-system experiences and outcomes of those served; (2) challenges to data integration include access to source data, maintaining data security, and the technical aspects of data linkage; and (3) regional data integration presents an opportunity to inform local decision making as it relates to understanding community needs and tracking the effects of interventions. Integrated data systems can play an important role in informing local programs and policies and evaluating their effectiveness. Effectively used, an IDS can serve as a tool to support the undertaking of innovative approaches to improve social outcomes and better evaluate their success.
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