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Session Type: Paper Symposium
The importance of youth involvement in health research is increasingly recognized due to its multiple positive effects on young people, the community and the field. Youth involvement is defined as conducting research with or by young people instead of on or for them. However, currently, less than one percent of studies in child and adolescent health report the involvement of youth in research. This under-involvement can be attributed to a lack of awareness among researchers on how to engage youth and sustain their involvement in health research. This highlights the need to explore methods that can be used to successfully involve young people in research in an equitable fashion.
This symposium focuses on the methods of involving young people in research using the findings of a systematic umbrella review and three empirical studies as case studies. All the included studies were conducted in consultation and collaboration with the youth. In these studies, we describe; i) the methods that were used to engage young people in these projects, ii) recommendations for the different strategies and methods that can be used to engage youth in overall health research, iii) the challenges experienced by researchers in engaging youth, iv) the mitigation strategies for addressing these challenges and, v) best practices of engaging young people in health research, and vi) how can the findings be used to improve overall youth involvement in research. The studies are from different geographical contexts (Ireland, United Kingdom, Australia, and United States) and are relevant to an international audience.
Methods of involving young people in health research: An umbrella review - Presenting Author: Azza Warraitch, Trinity College Dublin; Delali Bruce, Trinity Centre for Global Health, Trinity College Dublin, Dublin, Ireland.; Maria Lee, Trinity Centre for Global Health, Trinity College Dublin; Paul Curran, Trinity College Dublin; Qusai Khraisha, Trinity College Dublin; Kristin Hadfield, Trinity College Dublin
Safe, meaningful and effective involvement of young people with lived experience in suicide research - Presenting Author: Marianne Webb, Centre for Youth Mental Health, University of Melbourne; Orygen; Charlie Cooper, Centre for Youth Mental Health, University of Melbourne; Orygen; Laura Hemming, Centre for Youth Mental Health, University of Melbourne; Orygen; Emily Unity, Centre for Youth Mental Health, University of Melbourne; Orygen; Alex Dalton, Centre for Youth Mental Health, University of Melbourne; Orygen; Jo Robinson, Centre for Youth Mental Health, University of Melbourne; Orygen
Using youth participatory action research informed by bell hooks’ “love ethic” to explore the health and material needs of young parents - Presenting Author: Elizabeth Salerno Valdez, Drexel University; Saharra Dixon, University of Massachusetts Amherst; Jazmine Chan; Gray Davidson Carroll, University of Massachusetts Amherst; Thupten Dorney, University of Massachusetts Amherst; Elizabeth Delorme, University of Massachusetts Amherst; Justine Egan, Massachusetts Department of Public Health; Aline Gubrium, University of Massachusetts Amherst
Reporting patient and public involvement practice with children and young people in the design and conduct of paediatric clinical studies - Presenting Author: Jennifer Preston, University of Liverpool