06. Data Management, Dissemination & Linkage- Add Health (National Longitudinal Study of Adolescent to Adult Health)

• In Event: 3135 - Research Funding Opportunities and Data Resources Presentations

Abstract

The National Longitudinal Study of Adolescent to Adult Health (Add Health) is a longitudinal study of a nationally representative sample of adolescents in grades 7-12 in the United States during the 1994-1995 school year. The Add Health cohort has been followed into young adulthood with four in-home interviews from 1995-2009 and are currently completing web/paper surveys and in-home visits through 2018 for the fifth wave of data collection. Wave V data collection focuses on collection of social and biological data on the respondents at ages 31-42. This poster provides an overview of our data dissemination strategies, a four tiered system set to minimize deductive disclosure risk for respondents. The poster also presents the study's research aims, details on the longitudinal design and a summary of Wave V data collection currently underway. We will discuss the most popular research areas, major findings, and explore opportunities for new data users. Information will be provided on accessing public use data, accessing restricted use data, including the new online restricted use data application available on CPC's Data Portal, as well as information on accessing GWAS data via the NIH database of Genotypes and Phenotypes (dbGaP). Handouts provided will include recent high-profile publications, research briefs, documentation of public versus restricted use data, and cards with links to the Add Health Data Portal and dbGaP pages.

Authors

• Kelsey Meekins, University of North Carolina-Chapel Hill

• Maria Marrufo, University of North Carolina-Chapel Hill